Projects and Collaborations

Behaviours of Concern and Sleep

We are investigating the links between behaviours of concern and sleep, including the impact of improving sleep on behaviour. To address sleep problems in youth with NDDs, we have created Nova Sleepcare, a novel sleep education intervention co-designed in partnership with people with lived experience.

Learn more about behaviours of concern, sleep, and Nova Sleepcare

Developing Inclusive Research Protocols

Children and youth with NDDs who have behaviours of concern are often left out of medical research because of the intersection of age, disability, and behaviour. We are developing inclusive protocols to change that.

Learn more about our inclusive protocols soon

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Brain Imaging

We have developed a protocol to take high-resolution brain images of children and youth with NDDs who have behaviours of concern.

Learn more about our project on brain imaging

NDD Care Coordination

Care coordination helps children with NDDs and medical complexity access the right care, in the right place, at the right time. We are investigating how behaviours of concern impact care coordination.

Learn more about our NDD Care Coordination project

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NDD and the Gut Microbiome

We are exploring the links between the gut microbiome, fatigue, and behaviours of concern in children and youth with NDDs.

Learn more about our project on NDD and the gut microbiome

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Machine Learning for Precision Medicine

We are using machine learning and precision medicine to help us see patterns in complex data to improve the diagnosis, care, and treatment of children and youth with NDDs.

Learn more about machine learning for precision medicine

Inclusive Language in Clinical Research

While recognizing that inclusive language is always evolving, our lab has identified some key terminology and definitions that we use throughout our work.

Learn more about our inclusive terminology soon

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Mitochondria and Metabolism

We are investigating the links between mitochondria, metabolic differences, and NDDs.

Learn more about our mitochondria and metabolism project

Measuring Behaviours of Concern with the BoCAI

In partnership with people with lived experience, including children and youth with NDDs, their caregivers, educators, healthcare professionals, and others, we have created a novel instrument to measure behaviours of concern called the Behaviours of Concern Assessment Instrument (BoCAI).

Learn more about the BoCAI soon